WiKi Needs to Seriously Reevaluate Their Policies If They Believe An Article About “How To Fake A Migraine” Is Not Offensive

I have been really busy these past few days which explains why I am just now putting in my two cents about something that has been going on between wikiHow and people in the Migraine Community.

I normally don’t like to attack people or groups because we all have the right to freedom of speech HOWEVER in case, I’ll make an exception.

As someone who has lived with migraines for 27 years, developed chronic migraines just two years ago and cluster headaches less than a year ago I find that WiKi’s guidelines for what material is suitable very appalling.

I actually took the time to read each and every one of the thread posts between the wikiHow Admin. and people I’ve meet in the headache disorder community. I’m sure there was steam coming out of my ears and my eyes were beet red as I saw how the Admin from wikiHow was defending their policies by saying IT IS OKAY to post topics that are informative to others. 

REALLY?!?!?!

Are you FREAKIN kidding me?!?!?!

How is it informative to allow someone to post “HOW TO FAKE” a medical condition?

YES there is freedom of speech. As a published author I use my creativity to create fictional words for my readers to get lost in for hours. HOWEVER I do draw the line on what I will and won’t make up or reference in my own books. I would never make fun of any type of medical condition. EVER! It is just wrong on so many levels. 

To show you what some of the Admin are stating about wikiHowi here are a few posts they made after people from the headache disorder community starting requesting for them to remove content from their website:

“I can only speak for myself as an admin, but I apply the deletion policy to the articles I come across before voting because that’s what we’re supposed to do. Obviously, you have a different set of standards you apply, which concerns me because it should be based on the policy. Are you saying that if you come across an article that may not meet deletion criteria based on policy, but is one of these articles you think is “silly” and shouldn’t be allowed, you are going to vote to delete it anyway?”

“I’m not going to use my deletion powers as a wand and start deleting articles left and right because there’s a controversial blender that came out of nowhere before others had input and/or voting.”

“Just a little background: Our volunteers have spent almost 10 years building this how-to manual. With thousands of people collaborating from all walks of life came a way of doing things with some basic rules that we could all agree on. The deletion policy is one of those rules, something that’s kept our community on the same page for many years. Please don’t underestimate the power of tens of thousands of people from all over the world and with an incredible variety of viewpoints finding common ground for nearly a decade. I understand that, coming from a much smaller, more tight-knit group of people who identify along the lines of the painful condition you suffer from, it would be difficult to see how another viewpoint like that of our community would be anything short of crazy. But I’m asking you to remember that we are a huge, diverse community, not a small group with shared ideals beyond the desire to educate. Showing up and demanding not only deletion of one article, but deletion all fake sick articles and immediately is an easy way to declare war on people who have dedicated millions of hours to the sharing of knowledge.”

Apparently wikiHow is for entertainment purposes and none of us have the right to get upset or offended by what is posted there.

Maybe if I wasn’t living with chronic migraines and my son wasn’t suffering from his abdominal migraines I would see WiKi in a different light, but I don’t and I refuse to sit back and allow nonsense about headache disorders to be of entertainment value.

I wonder….would any of these Admin. be offended if there was an article posted about a medical condition they or a loved one battled each day against?

I’m sure they’ll comment saying it’s freedom of speech and blah, blah. blah to keep their place as a wikiHow Admin. But I have lost the ability to drive for 18 months, the ability to do normal things around the house due to the severity of my migraines taking over my motor skills and got let go from a job that I loved because of my headache disorders. So I won’t allow anyone to make fun of my medical condition.

All I have to say is that wikiHowi definitely beat the bee’s hives when they chose to defend themselves against a bunch of people living with migraines and cluster headaches. 

I’m sure there will be even more of a backlash from their Admin as the headache disorder community fights back against the ridiculous articles written about our medical condition.

Maybe if other people with life altering medical conditions knew what wikiHow was allowing to be on their website the war on freedom of speech may not be so one-sided.

The moral of this story is, if you want to be heard then do something about it.

Trust me when I say, I want to be heard and I’m ready to defend a condition that over 36 million Americans live with that currently has no cure and articles that were written out of entertainment value makes our battle that much harder to fight.

 

***Here is the article that has developed so much controversy in the headache disorder community that there are a lot of people emailing the founder wikiHow founder Jack Herrick to get him to IMMEDIATELY remove from their website.

http://www.helpforheadaches.com/wikiHow-Fake-Migraine.pdf

http://www.helpforheadaches.com/wikiHow-Fake-Migraine.pdf

 

Interview with Crossroads Review

I was ready to go for my interview with Crossroads Review when a storm decided to cut me off from my internet.

How ironic that I was going to talk about my #1 Best Seller The Storms That Fated Us when a storm just happened to keep me away from my readers. 

Since I was not able to go back online I answered some of the same questions asked by the website’s host Jessica.

ENJOY!!!!!

So, what have you written? Moving On Without Him (Currently unavailable, but will be re-published as a second edition with additional chapters from Jace’s POV) Like A Moth To His Flame is the first of three novella’s in the Moth To A Flame Series and The Storms That Fated Us. I was also given the opportunity to write an article for InD’tale Magazine about living with debilitating chronic migraines and cluster headaches while advocating for headache disorders.Where can we buy or see them? I have my books available on Amazon and you can read my article in May’s Issue of InD’tale Magazine.

http://www.amazon.com/JP-Summers/e/B007AXDU34/ref=ntt_athr_dp_pel_pop_1

http://www.indtale.com/magazine/2014/may/#?page=44

Give us an insight into your main character in The Storms That Fated Us. What does he/she do that is so special? Tia Deltoro is a soon-to-be 23 year old that hasn’t quite learned how to let go of the past. Five years after graduation she has major self-esteem issues and no positive outlook on life since her former best friend Carson Rodriguez took away what was left of her dignity and heart. Tia comes off as naïve and a pushover when she falls in love with Carson. Of course that love for her best friend makes her do and say things she normally might not had if he reciprocated those same feelings right back.

What are you working on at the minute? A Contemporary Romance Novel titled Defenseless.

What’s it about? A NFL Quarterback gets diagnosed with a medical condition that has his family and team concerned about his health. He refuses to let his health jeopardize his football career and decides to do whatever it takes to keep his place on the field.

What genre are your books? Contemporary Romance and New Adult.

What draws you to this genre? I think it has a lot to do with by love for reading books in those particular genre.

Which actor/actress would you like to see playing the lead character from your most recent book? I actually thought about this after my husband read my book and said it would make a good movie (YES….my husband REALLY read one of my books and complimented it) It was a no brainer for who I wanted to play Carson. Jesse Metcalfe who played the young, hot and sexy gardener from Desperate Housewives and you can now see on Dynasty as Christopher Ewing. As for Tia I would have to say it’s a toss-up between The Secret Life of the American Teenager star Francia Raisa and Glee’s Naya Rivera.

How much research do you do? TONS!!! I am constantly on the web researching things that will show up in one of my story lines.

When did you decide to become a writer? I had an idea for a story that kept playing itself over and over in my mind and finally decided to get out my laptop to type every one of those thoughts into several chapters that would eventually turn into my very first novel.

Why do you write? I need a creative outlet to express all of the ideas that are constantly floating around my mind. Writing can also be very therapeutic. I love how I can take whatever mood I am in and put all of those emotions into my fictional characters.

Do you have a special time to write or how is your day structured? My creativity seems to work better when there are no distractions. Usually I wait until everyone is fast asleep before I start writing.

Do you write every day, 5 days a week or as and when? In my first two years of writing I wrote every single night. I would start any time after 10PM when there was no chance of anyone disturbing me.

Do you aim for a set amount of words/pages per day? I think it’s more of a challenge to set a goal to write a certain amount of words.  

Do you write on a typewriter, computer, dictate or longhand? I use a computer. My laptop keys are so worn out that you can only see part of the letters on the keys. In matter of fact, I am on my second laptop since I started writing two years ago.

Where do your ideas come from? Watching a show on TV, listening to the lyrics from a song or just spending time with the family.

Do you work to an outline or plot or do you prefer just see where an idea takes you? I don’t ever like to do an outline because my mind is constantly changing from one idea to another. I prefer to put my hands on my keyboard and just go with it.

What’s more important: characters or plot? I would have to say the Plot. If you have an amazing plot your characters can evolve into the story line you created.

Do you proofread/edit all your own books or do you get someone to do that for you? I have a team of editors and proofreaders that work with me on my manuscripts. I am terrible with punctuation and I can never get my tenses in the right order.

Who designed your book cover/s? At the time that I published my first book, my 15 year old daughter did the photography and graphic design for it. After taking some lessons from her I worked on the cover for Storms with just a little bit of her guidance.

Would you or do you use a PR agency? After I published my first two books I unexpectedly fell off the grid due to some major health issues. A year later I started to feel well enough to finish working on my manuscript and finally publish another book. Since I hadn’t done anything in a while I knew I had to find a way to get word out that I was writing again. Not only did I find a publicist to help me get my name back out there as a writer she open up many opportunities for me to reach goals I never thought would be attainable.

What are your thoughts on good/bad reviews? I always love to answer this question. I welcome the honest opinions of my readers. When I decided to take the leap into publishing my work I knew there would be people that loved my books and others who thought my writing wasn’t that great. At the end of the day I did something I never thought I would do. I published a book. Something many always say they’ll do, but never getting around to it. That alone makes me dust off the harsh reviews and smile at the ones that say they can’t wait to read my next book.

Which social network worked best for you? It’s a tie between Twitter and Facebook. Both have tremendously helped with finding more readers for my books.

How do you relax? I love to veg out in front of my TV and do a marathon with one of my favorite shows.

For your own reading, do you prefer ebooks or traditional paper/hardback books? Ebooks since you are able to carry around your collection books on one device.

Where can you see yourself in 5 years’ time? Splitting up my time between advocating for headache disorders all over the country and writing/publishing books in other genres to reach an audience of new readers for my work.

What advice would you give to your younger self? Don’t listen to your teachers when they say quit daydreaming! It is that vivid imagination that can turn out to be the next bestselling novel.

If you could have been the original author of any book, what would it have been and why?  The Twilight Saga. I am a big time Twi-mom and Team Jacob. Towards the end of Eclipse I would have had Bella given Jacob a chance to see he was perfect for her. She had was an epiphany of what her life would be like if she had chosen Jacob and that alone should have made her say “You know….I might not want to be a vampire and spend an eternity with Edward.” Breaking Dawn was hard to read for so many reasons. If I had my way that whole book would have been Bella really experiencing life and telling Edward to take a hike.

What advice would you give to aspiring writers? Write because you love it. Not because you are hoping to hit it big. The real reward is having readers that enjoy your work and seeing the smiles on their face if they ever meet you in person.

 

 

 

 

Does Icing A Migraine Really Make A Difference? My First Experience Using A CryoHelmet

I received a complimentary Cryohelmet a few days ago and today was the first time I put it to use on a low grade migraine.

The Catalyst Cryohelmet is a revolutionary new product designed for head injuries. 

Right now there is no great treatment for severe or mild traumatic brain injuries (concussions). Rest is the only recommended course of action. Evidence shows that every hit counts — in tackle football, women’s soccer, ice hockey, baseball, martial arts, and in non-contact sports. Trauma accumulates over time from repeated impacts. Even the small hits during practice and games contribute.
 
Their approach uses cold therapy to treat some of the inflammation that occurs with these injuries. The use of cold therapy is a rapidly growing field in medicine called “selective therapeutic hypothermia.”
 
Migraine sufferers have used ice on their heads for decades, and stroke and cardiac arrest patients are experiencing better outcomes due to Therapeutic Hypothermia treatments.
 
Evidence indicates that cooling the brain reduces the inflammatory effects that occur from head trauma.

So how did the Cryohelmet work on my migraine the first time I used it?

30 minutes after I placed it on my head the pain from my level 5 migraine decreased to about a 2. Even the dizziness that usually accompanies it seemed more bearable. It felt great to feel some relief in just a short period of time.

I can honestly say I was very impressed with the results only after one use.

CryoHelmet 1 CryoHelmet 2 CryoHelmet Pic

To learn more about the Cryohelmet visit their website.

http://www.cryohelmet.com/

This Young Migraineur Fights Her Own Chronic Pain by Helping to Spread Migraine Awareness

9 year old Lindsay is one of the 36 million Americans that live with migraines.

She chose to fight back against her chronic pain by making this video to show others why migraines are a serious medical condition that needs for funding towards research in order for there to be a chance at finding a cure.

Check out what my publicist just tweeted about The Storms That Fated Us

I am still trying to wrap my head around all of what has happened these past few months.

I honestly never thought I would accomplish something as wonderful as making a best seller’s list after unexpectedly taking a very long absence from the writing world because of all of my severe and very debilitating chronic migraines and cluster headaches.But here I am, smiling so hard my face will no doubt be hurting for days. Which I am more than okay with!

Of course none of this would be possible without the help of my publicist, who had total faith in me and my work not to mention my family, friends and readers that kept encouraging me to never give up on doing something I love so much.

I don’t think BLESSED can even come close to describing what I am feeling right now, but it definitely comes pretty darn close.

Screenshot (379)

 

http://www.amazon.com/Storms-That-Fated-Us-ebook/dp/B00FXA6YZC/ref=sr_1_1?s=books&ie=UTF8&qid=1406234534&sr=1-1&keywords=the+storms+that+fated+us

The Between Boyfriend Collection

Now you can get all 3 of Sarka-Jonae Miller’s ebooks in one swanky collection!

The Between Boyfriends collection combines the award-winning comedy novel, Between Boyfriends, with its two hilarious sequels. The romantic comedies follow the misadventures of twenty-something Jan Weston from San Diego to Sydney, and from one City of Angels to the other.

Between Boyfriends

At first glance, twenty-one-year-old Jan Weston has it all: a gorgeous boyfriend, fun friends, and wealthy parents who take care of all those pesky credit card bills. Then her boyfriend dumps her, her friendships fall apart, and her parents cut her off. Suddenly without money, without a man, and without a plan, it’s time for Jan to grow up.

Determined to get her life back on track, Jan decides it’s time to make it on her own. Can she find her way as a single lady in San Diego? Can she fix her friendships, her job prospects, and her hair? And can she keep her vow that she’ll never date again, even after she meets a guy who just might be perfect for her?

BETWEEN BOYFRIENDS is a sexy, hilarious story of living life, finding love, and growing up…but not necessarily in that order.

Between the Sheets

It’s been three years since Jan Weston swore off men, and her resolve isn’t what it used to be. When a family emergency diverts her travel companion to LA, a fun semester abroad in Bangkok turns into a lonely trip for one. Although she’s supposed to be studying international business at Thammasat University along with Thai massage at the famous Wat Pho, Jan finds herself studying her teacher,
especially his cute butt.

But she isn’t just hot for teacher. Jan also meets an athletic Italian ready to show her a good time and an artistic Thai man who says all the right things. Can she resist the allure of dating abroad? Could she even choose which of the three she wants between the sheets? And if she does give in, can what happens in Bangkok stay in Bangkok?

As Jan struggles to finish her education amidst so many distractions, she must also deal with the loss of a friend, a deep betrayal, and news of a death in the family that could lead to an overdue reconciliation. BETWEEN THE SHEETS is a sensual story of making mistakes, overcoming obstacles, and finding love in the
strangest of places.

Between Heartbreak and Happiness

Jan Weston is heading to the land Down Under to meet her long-lost grandfather, leaving the man she thinks is the love of her life back in Los Angeles. Instead of a pretentious gentleman with a didgeridoo up his bum, Jan is greeted by a Hawaiian shirt wearing surfie to whom she couldn’t possibly be related.

Jan gets to know her grandfather Brady while experiencing everything Sydney has to offer, from hanging out at Bodhi Beach to visiting local spas (if she happens to find ideas to steal for a future business, even better). The final pieces of her family’s puzzling past are revealed and for the first time, Jan feels connected to a blood relation, but her need to return to Pan is a constant pull.

When the lovebirds are reunited, they realize neither have a solution for what to do when Pan’s job ends and he must fly home to Thailand. If she could make her spa a reality, maybe there’d be a place for him there, and with her, forever? But Jan’s life is never easy. As she questions her lover’s commitment, her ability to run a business, and her sanity, Jan realizes that all the things she never considered might be exactly what she needs. BETWEEN HEARTBREAK AND HAPPINESS is an inspirational story of love, family, taking risks, and following your heart.

 

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Clyde Mach

Book Reviewer

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